Do you or does your child suffer from Recurrent Respiratory Papillomatosis (RRP)?
Why do some people get the disease and not others?
Why do some run such an aggressive course and others not?
Dr. Farrel Buchinsky, a pediatric otolaryngologist, in Pittsburgh, Pennsylvania is studying genetic susceptibility to RRP (both adult-onset and juvenile-onset). He is backed by a research grant from the National Institutes of Health (NIH), the state-of-the-art capabilities of the Center for Genomic Sciences (CGS) at the Allegheny-Singer Research Institute and by the collective clinical experience of the doctors of the RRP Task Force. Now two additional organizations are assisting to publicize the study and to recruit participants: the Recurrent Respiratory Papillomatosis Foundation in Lawrenceville, NJ and the International RRP Information, Support and Advocacy (ISA) Center based in Bellingham, WA.
[PDF Flyer and Documents]